Cooking for my family has grown more and more challenging over the years. My husband has Barrett's esophagus, so he is not able to eat any spicy foods. When I say no spices, I mean there can't be a tiny trace of spice or he will suffer for the next 12 hours. It's boring to eat bland chili and Mexican food, but that's what we do. I grew up sprinkling crushed chili peppers on my spaghetti, so it's especially difficult for me.
Both of my daughters have been lactose intolerant since infancy. It's different than a true dairy allergy. Those with lactose intolerance can't digest the sugar (lactose) found in most (but not all ) dairy products. That wasn't so difficult because it was easy to avoid ice cream and soft cheeses and substitute soy milk for regular milk, back in the day. They knew to carry Lactaid tablets with them if encountering pizza or other foods that they wanted to eat while at school or social gatherings.
Unfortunately, over the past year, Middle Child has developed more digestion issues and symptoms of Irritable Bowel Syndrome. If you've read anything about the gut-brain-microbiome axis, you will not be surprised that it's common to find in persons on the autism spectrum and with other psychological disorders. She had some anxiety issues last fall, which could have been the trigger. And then 2020 happened and she was laid off for 4 months. I was hoping that once she went back to work in July that she'd see some improvement in symptoms, but it hasn't happened.
Before seeing a specialist, which I think would just add to the trauma for her, we are trying some diet restrictions. The first has been a complete dairy elimination. It's been a lot of package reading for me, making sure milk is not an ingredient. Fortunately, we don't eat a ton of processed foods, but she does like to have things like granola bars for snacks. I'm happy to report that labels now say 'Contains (possible allergy ingredients such as milk, wheat, soy, nuts)' underneath the long list of ingredients, so that it's easy to find! The hardest part has been not using butter while baking. I refuse to buy margarine, so it's been tricky. I've found an olive oil spread that's not a perfect substitute, but will do.
".If you've read anything about the gut-brain-microbiome axis, you will not be surprised that it's common to find in persons on the autism spectrum."
ReplyDeleteYes, I knew that because of my friend, who I told you about, has a son with autism and he too has digestion issues. He has a very hearty appetite, so my friend has to watch his diet carefully.
OMG...those stuffed shells look amazing! As you know, I have such a passion for anything pasta or cheese.
"NOT EASY and NOT CHEAP!"
I know, isn't that funny how eating healthy costs more?
I love the meal bowls you made because that's how I love to eat. I eat a ton of salads, and lately I've been making some really tasty soups.
I applaud you for all the effort you put into these special diets. Well done!
Wishing you and your family a very Happy Thanksgiving! And I'm so thankful for your longstanding friendship! X
I do remember your friend’s son and I’m sorry to hear he has issues, too. Another friend of ours on the spectrum has ulcerative colitis and is constantly undergoing procedures for it, which I’m trying to avoid.
DeleteYes, isn’t it terrible that eating healthy is so expensive? Which is why we have such an obesity problem in the U.S. I just noticed strawberries went up $1 over the weekend, so I’m sure all the other berries will be next. Irritating, but I know it’s because they’re no longer available nearby.
I love soup this time of year, too. I’m going to try to make it more often with all the new recipes I’m finding on Pinterest. I’ve been following your BudgetBytes and really like it. And I’m thankful for your friendship as well. We’ve outlasted almost all of our mutual followers. XO
One of our daughters has recently begun having IBS symptoms. Not fun.
ReplyDeleteI've been eating a 'special' diet for many years; it's sort of a variant of South Beach - lots of fresh fruits and veggies, whole grains, no sugar, and more chicken and fish than beef. Jenn is on board with me, but our kids are not supportive at all, and bring their own junky stuff to our house. Pizza is hard to resist, but I should. Etc, etc. . .
Oh, I’m sorry to hear of your daughter’s issues. Maybe it’s stress related? This hasn’t been a fun year for anyone. Good for you on the diet. It sounds like you’re doing everything right. And pizza is my downfall as well.
DeleteWow, I had no idea there were so many dietary difficulties in your family. Like Ron, I applaud you for taking account of them all and making all the 101 adjustments to your various diets. And yes, the price differential on healthier foods is shocking.
ReplyDeleteLuckily Jenny and I don't have any serious dietary problems. I have a very slight acid reflux problem which causes the occasional heartburn but that's it.
We've been blogmates for quite a while too - at least 8 years. Glad you aren't put off by any of my dottier posts!
Thanks, Nick. We have been blogger buddies for a long time. And no, your posts don’t put me off, but some of your followers do. LOL.
DeleteI don't have any official dietary restrictions, but my system doesn't handle a lot of things well, especially when I'm stressed, so I have to be careful about things like tomato sauce sometimes. And I have to limit soy, which is in practically everything. We both have to periodically limit dairy because of sinus/congestion issues. I don't know if you've checked out the site Budget Bytes, but she has a lot of non-dairy recipes, and has a lot of recipes that have substitutions for dairy and other ingredients.
ReplyDeleteI hope you and your family have a Happy Thanksgiving!
How frustrating, and yes, soy seems to be in so may things. My blogger friend Ron introduced me to BudgetBytes a few months ago, so I follow on Pinterest. Thank you!
DeleteMy daughter had a diary allergy. After a long program created by the Univ of Michigan, she is now able to have diary, but doesn't over do it. Those dishes look good.
ReplyDeletenew blog: http://fromarockyhillside.com
That’s interesting that she overcame a dairy allergy. I’ve read that anyone who goes without dairy for awhile loses their ability to digest lactose.
DeleteHappy Thanksgiving to you too. Hope everyone gets to enjoy something special despite dietary restrictions. I am much happier if I don't eat too much gluten and I am allergic to tomatoes so my wife tries to accommodate but it's hard with little people in the house.
ReplyDeleteThat’s a bummer about tomatoes. I guess you have to stick with Alfredo sauce. Hope you and your family have a wonderful holiday.
DeleteOh wow; it is hard to cook or find stuff to eat with the restrictions you are dealing with. Glad you have found some substitutions! My hubby's brother and SIL have food allergies or things they avoid. Its a "joy" to go out to dinner with them LOL because when ordering they always have a special thing needed, like don't cook in oil, no butter, etc. Our son got diagnosed with gout a few months ago. He's been trying really hard to limit his diet and avoid the foods that might make flare ups of it. Its been a challenge for him especially since he's the cook at the Italian restaurant and they do a family meal daily that often includes the foods he's trying to avoid LOL. A work in progress though.
ReplyDeleteHappy Thanksgiving!
betty
Yes, I understand how that is when you are dining with people who have to spend 10 minutes asking questions! Lol, when they get to me, I always say, “I’m easy!” My mom recently found out she has gout. She’s been trying natural remedies with some success. It would be hard working in a restaurant. Enjoy your Thanksgiving!
DeleteWow, Bijoux, you really rose to the challenge. I admire how you're finding ways to adapt to this situation. You're an inspiration.
ReplyDeleteHappy Thanksgiving to you and all your loved ones!
Thanks, Rob. I hope you are able to spend the day with your sister.
DeleteCan take up to 6 months to get it out of your system and years for the hairs in your bowel to heal fully. YEARS!!!
ReplyDeleteHave to do what you have to do though. Trust me on that. I eat like 7 foods and that is it. If not bad things happen. Diary is a no go for me. Gluten is a no go. Alcohol is a no go. Fish is a no go. Grains are a no go. Supplements up the ying yang are no gos. So yeah, fun times lol but you find a way indeed. Keep at it, as it takes a long time to see results. And if one's bowel gets too bad can lead to nerve issues and bone loss. As the bowel absorbs very little to nothing.
I knew you had a limited diet, but didn’t know the how or whys. I’m sorry that you’ve suffered. I have a friend who has severe allergies to most foods, as well. Her issue is hives that cover her body, but it didn’t start till age 45 or so. Nope, not quitting until we find what works.
DeleteThat stinks indeed. Although I'd take hives over nervous system issues. At least I say that now lol
DeleteBest to keep trying indeed. And one good rule is never try too many things at once as you don't know what works and what flares it up.
Thanks, Pat. I’ll keep you posted if and when we make any discoveries.
DeleteTara doesn't have dietary restrictions, but she is picky as hell...which is pretty similar when you think about it, lol. That's okay: I just gussy up my dishes with lots of crushed red pepper flakes, etc. Which you can probably do yourself when you make spaghetti, right?
ReplyDeleteI’ve always wondered about Uber picky adults . . . Did something happen in childhood to cause it?
DeleteI've been hearing about people that have been bit by lonestar ticks having similar symptons. The problem isn't a glucose or dairy issue. If you're bit by a lonestar tick, the problem is actually meat! Imagine getting a bug bite that makes you unable to digest meat?? Ugh!! I'm not big on dairy, but like your children, could take a pill when I want to indulge. I use almond milk a lot as a substitute. Regarding gluten, that's a tough one! My aunt has celiacs disease so has to go full gluten free. She makes a pretty decent glueten free baked ziti, but she said the macaroni costs about $20 a pound!!!
ReplyDeleteoh, and HAPPY THANKSGIVING!
DeleteI have heard of that weird tick - meat thing! So bizarre! I know that people of Italian heritage often have the lactose problem, so my husband may have passed that on to the girls, even though he doesn’t have the issue. I’m finding a lot of gluten free pastas out there, everything from chickpea to lentil pasta. It’s definitely pricey, but not that bad here! Hope your holiday is fabulous! XO
DeleteI’m sorry to hear about your daughter’s digestive issues. I was diagnosed with Ulcerative Colitis at 26 years of age. I had a few years of digestive issues before I started passing blood in my stool. Probably TMI, but this is something that your daughter needs to be watching for. I’m now high risk for colon cancer and have to have yearly colonoscopies (sometimes I have 3 in a year when I’m really sick!) I just want to point out the seriousness of IBD (different than IBS, but if she hasn’t been seen by a doctor, she can’t assume it’s just IBD). A 20 year old boy just passed away from Ulcerative Colitis because he was to embarrassed to address the symptoms with his dr. With that said, diet really does help lessen the severity of the symptoms. Dairy and sugar are huge triggers for me. Gluten hasn’t been terrible, but I do eat it sparingly. She should cut carbonated beverages and see if that helps. Red meat is hard to digest, so when I went vegetarian, I was able to achieve a 3 year remission from my illness. (Fighting to get back to full health, but stress is also a big trigger for a flare for me so it’s not easy). Turmeric is great for digestion and reducing inflammation. That might help her. They make them in capsules or she can even drink turmeric tea. Nuts and seeds are also hard to digest, so you might want to cut those out to see if she improves any without them in her diet. You might want to look into the SCD diet. It’s very strict, but it’s awesome at healing the gut microbiome. Good luck getting her on track. It’s super frustrating playing the elimination game, but hang in there! You’ll figure out what works and what doesn’t soon enough.
ReplyDeleteThank you so much for all that info! I will look into each idea. She does eat a lot of nuts for protein, as well as beans, which I’m now reading are not a good idea (FODMAP). It’s frustrating trying to eat healthy and then finding out a lot of it could be the cause of her issues. I will add that I think there’s a hormonal element because it gets much worse around her period. And yes, she knows to check for blood and sounded the alarm when we had roasted beets last week. Lol, so I know she’s watching. Thanks again for your ideas and help.
DeleteAnd I’m so sorry about your own issues. That’s stressful to have procedures like that so often.😩
DeleteIt is so frustrating when the foods that are considered healthy really aren’t for people with digestive issues. When I tell people I can’t eat salad (it will land me in the hospital) they’ll say “but it’s so healthy!” I can’t do popcorn either, but it’s a “healthy snack”. Yes, my symptoms worsen around my monthly period. I was supposed to have an ablation earlier this year to help with that, but I was too nervous to do surgery with Covid hitting. Even if it’s not IBD or IBS, you can get a lot of useful information by joining any of the Crohns or Ulcerative Colitis Facebook groups. Also, the SCD Diet has a Facebook group that’s been invaluable to me while learning about digestive issues. Your best bet though is doing the elimination process, then adding those foods back in to see if they trigger her or not. What works for one person could really hurt another with the same disease. That’s what’s so frustrating because it’s not a one size fits all treatment. Also, look into adding quality probiotics to her daily regimen. Something like VSL #3. Not that drugstore probiotics are bad, but I believe a quality one offers better results.
DeleteThank you! Esp.for the probiotic recommendation. I bought one but didn’t realize it had dairy. Irritating! I’ll look into the groups.
DeleteI am sorry about the health situation of your family. I wish your husband back to work soon.
ReplyDeleteYour skills and struggles to make diet dishes are worthy of appreciation and amaze me.
Regards
Thank you.
DeleteFirst, best wishes for a Happy Thanksgiving to you and your family and despite the various dietary issues and restrictions you described in this post, you certainly have workarounds. Thankfully, there are no known food issues here aside from a dislike of liver and Brussel sprouts. Thanks for an informative post as I learned a lot.
ReplyDeleteThank you! I’ve never had liver (my Dad hated it) and I don’t like the smell of Brussel sprouts, but I do like them roasted.
DeleteThat sounds like a cooking nightmare to me! Mind you I don't cook.
ReplyDeleteWe don't celebrate Thanksgiving in the UK, but I hope you have a wonderful holiday and get to eat some things YOU like!
It certainly has been a pain in the ass, but I’m getting by. Thank you and I will be enjoying my gluten filled pumpkin pie with real whipped cream!
DeleteHaving a house full of people with different dietary restrictions would be difficult. I have diabetes so I try to stay on a low card diet but it's not easy.
ReplyDeleteIt’s definitely not easy to do low carb. I’m glad to see you, Mary. You’ve been missed.
DeleteIt sounds like your creativity is serving you well in the kitchen as you try to meet the needs of your loved ones. Blessings to you and yours.
ReplyDeleteI wanna take a bite of that chocolate cookies~~
ReplyDeleteThey weren’t that great.
DeleteWell, I could write a novel on the subject. Mom and Big Brother had issues with lactose intolerance, Big Brother has IBS, Mom has digestion anxiety, and both have other various food allergies of varying severity. It would have been manageable except both saw the attention it got 'em so they both learned to make stuff up about what they could and couldn't tolerate. Every family gathering their claims changed and even if asked beforehand they'd claim it changed since we spoke ..... day before yesterday (no, not exaggerated). People like them is why .....
ReplyDelete.... when Sensible developed GI issues related originally to the lactose thingy we fought with the rest of the family for years to get 'em to understand Mom and Brother were manipulators but Sensible's issues were real. To date we have Sensible worked out to be livable but there are still some problems unresolved. It took dropping her diet down to just skinless boiled chicken and some funky non-reactive rice as all she ate for months to settle her digestive system down, then experimenting and trying things one at a time one week at a time.
My best advice, treat it like a science experiment. Take notes, write up theories, test out theories, take more notes. The digestive system is STILL a bunch of weird science that we haven't completely unlocked. No two are alike. Have patience and you'll unlock the secrets to improvement!
Good grief on the attention getters. Although, so much of digestion is related to the brain and emotions, maybe you can’t rule anything out!
DeleteWeird science? My oldest daughter (RN) was attending during the first fecal transplant at her hospital. Crazy stuff! But we will keep working in the mystery of Middle Child.