In late February, we had a 60 pound metal filing cabinet delivered to our home, which was left in front of our garage. As it was raining and I had to pull my car out to leave, I took it upon myself to drag the oversized box across our garage floor and up one step so that my husband and I could both pull our cars back in later that day.
That evening, I was struck by the most intense pain in my lower back. 10/10 PAIN. It lasted about 30 minutes and then disappeared. My husband thought maybe I was having a 'muscle spasm,' though neither of us really know what that it is. Afterwards, I felt perfectly normal again. However, the next evening, the same exact thing happened again, sort of same time/same place, this time lasting 60 minutes. Nothing I did helped and I could barely move. I also felt nauseated. The only way to describe the pain was that it felt like I was in labor. And the only pain I've heard described as similar to labor is kidney stone pain. So yes, that did cross my mind. And I did have another episode of the pain about 4 days later, again only lasting 30-60 minutes.
You might wonder why I didn't go to the ER. Well, I avoid hospitals like the plague, which incidentally, this was occurring during the height of the pandemic. My only explanation was that the pain went away and I figured it was from hauling that box.
Fast forward to late May, three months later, and out of the blue, the pain hits me again late one night. Now I was concerned, as I couldn't think of anything I had done to reinjure my back. I called my primary care physician the next morning and got in immediately. She found the whole thing to be odd and didn't immediately think kidney stone, but I did do a urine test and a complete blood work panel. The next day, those results showed nothing out of the ordinary, so she scheduled me for a CT scan. And that's when I learned that I had a 4 mm obstructing stone in my left ureter, meaning that urine was being partially blocked between my left kidney and bladder. My doctor's office wanted me to see a urologist immediately, due to the numerous risks. Of course, this all took place on a Friday, so I wasn't able to see anyone till Monday. Fortunately, I was not in any sort of pain.
The urologist was a complete idiot, never once looking up at me from his laptop, gave me incorrect information about what foods/drinks I shouldn't have, and misled me about my surgical options. And don't get me started about the office staff, none of which wore masks, and were highly unprofessional (this would take an entire new post).
I went home in tears, regrouped, and the next day I found a new urologist that I was able to see in a few days and is the leading doctor in that particular hospital system. He looked at my labs and imaging before he came into my exam room, sat down with me and my husband (who I brought for emotional support after the previous appointment) and discussed my options in a manner that put me at ease. We agreed that a ureteroscopy was my best option if I didn't pass the stone within a month's time, which is unfortunately the wait time for the surgery. Surgery was scheduled for July 12th.
Meanwhile, he had me on Flomax, and I began drinking about 3 liters of lemon water a day. A week before surgery, I went back for another CT scan to make sure the stone was in the same spot. Lo and behold, there was no stone in my ureter, but one was visible in my left kidney, again 4 mm. I was positive I had not passed a stone, so my urologist said the stone must have moved back up into the kidney. Odd to me that it went upstream, but I guess stones can be elusive/tricky. At this time, I've opted to not have surgery and take a wait-and-see approach.
'Where's the cautionary tale?' you may be asking. Well, the risk factors for stones are:
1. Male (nope)
2. Between 20-49 years of age (I wish)
3.Family history (nope)
4.Overweight (nope)
5.Medications, such as diuretics and antacids (nope)
However, under Diet:
Inadequate fluid intake (nope)
High animal protein intake (nope)
High salt/sugar diet (nope)
Excessive vitamin C supplements (none)
Excessive vitamin D supplements (hmmmm.....well, my PCP instructed me to take 2000 iu of vitamin D/day after my blood work tested low a few years ago)
Excessive intake of oxalate containing foods ('What are those?' I wondered . . . )
Oxalates are naturally occurring in plants, but in humans, they can join together with calcium in the kidney to form stones. 80% of kidney stones are calcium oxalate. What I've learned is that you need to ingest calcium from foods (not supplements) WITH oxalate foods in order for it to bind in the intestines so that it's eliminated through feces instead of urine.
Considering that I had cut back on my dairy consumption over the last 5 years, plus eating what I thought was a healthy, plant-based diet, I believe that's what has caused my issue. The highest oxalate foods are spinach and almonds and I was eating salads mixed with spinach most days, along with eating almonds, almond butter, and drinking almond milk everyday. Other high oxalate foods include: potatoes, beets, bran, brown rice, buckwheat groats, bulgur, cashews, cocoa powder, cornmeal, dates, figs, millet, miso, navy beans, okra, raspberries, rhubarb, soy, sweet potatoes, and walnuts.
Basically, a healthy diet! I've completely eliminated spinach and almonds and a few of the other highest oxalate foods and have cut way back on the others. I'm also consuming 4 servings of dairy per day and I've dropped the vitamin D supplement for now. The last thing I want is for my current stone to get bigger or to grow another one. If you take supplements or eat a plant-based diet, please be aware of the danger of kidney stones. And, drink your milk!

I didn't know any of this about kidney stones. I'm sorry you had such a lousy experience with that first doc, but am glad you found one who knows what he's doing. I totally understand about not going to the ER. As for no spinach and no almonds? I am in mourning for your diet. I live on those two foods, plus most of the other high oxalate foods you mention. Stay well
ReplyDeleteI had no idea that spinach and almonds could be so bad for you. I’m just careful now to not buy lettuce blends that include spinach, so that’s been easy. Not having almonds (and really, most nuts are fairly high in oxalate) has been killing me! I’ve been subbing with sunflower seeds/butter and pepitas, but not the same thing, that’s for sure!
DeleteWOW, that first urologist did sound like a complete idiot! And I'm blown away that the staff weren't required to wear masks!?! So happy to hear that the second one was much better. Not having the right doctor can be worse than the issue itself because you have to put your trust in them.
ReplyDeleteOMG, it was so interesting to read about oxalates because I had no idea! And you're right...basically a very healthy diet. Which, by the way, I eat a lot of the things you listed. However, I don't take Vit D supplements. And I am also not vegan, therefore I do eat dairy and drink lots of water.
Thanks so much for sharing your story because it was so educational! And I hope the stone passes.
Ironic that you posted this today because over the past two weeks, TWO people that I work with had kidney stones, I kid you not. One was a female, the other a male. They both passed the stones and are doing well.
Take care, my friend. And have super weekend! X
I could really not believe that staff. There was a kid back there, too! Maybe it was an emergency babysitter issue, but it was odd. They also argued with me on the phone with what the doctor had told me. It was a real sh*tshow! I’m glad to hear you eat dairy because so many people do not, as we’ve been led to believe that the fat in it is not good for you. Everything in moderation!
DeleteAnd yes, right before my problem started, I had two friends who had stones, plus Secret Agent wrote about it. And I suspect all three eat a lot of those high oxalate foods. I really think the almond boom has led to a higher incidence of stones. Have a good weekend, Ron and thanks for stopping by so early.
Interesting about the high oxalate foods and their contribution to causing kidney stones. Sorry you are having to deal with this! I hear kidney stones can be quite painful! Funny but I have taken massive doses of vitamin C for years and no problems. But then I drink a ton of water. So who knows! Hubby and me were just talking the other morning trying to remember when we last had a glass of milk. Its been years. I don't even use milk on cereal any more since I'm not eating cereal. Might have to remedy that!
ReplyDeleteDo take care of yourself!
betty
I think plenty of people have stones but don’t know it till a stone moves or they have a CT scan for something else. Yes, I’d definitely make sure you’re getting calcium through food sources.
DeleteThe only thing I knew about all that - is they are painful - I have not had one yet - praise God - but I have had friends who have. I am so sorry and hope it gets resolved sooner than later!
ReplyDeleteThanks for stopping by! Hope you blog again!
DeleteI had to have my K-stones blasted several years ago to pass them. If having a baby is anything like K-stones it is a miracle that a women will go through that multiple times VOLUNTARILY!! Damn, you all are tough.
ReplyDeleteGiving up spinach was easy for me, also was told to stay away from tea, and drink lots of water. Hopefully it will stay put if it is not bothering you now, but good to at least know what the problem is.
Well, I did natural childbirth three times and this is exactly what it felt like! My current urologist is not a proponent of the blasting procedure but I’m glad to hear it worked for you. I did give up tea because it was on the questionable list and coincided with me getting the stone as I had started drinking 2 cups of fresh brewed green tea a day over the last few years.
DeleteSeems like a cruel joke that all those high-oxalate foods are the ones that are the healthiest for you otherwise. Spinach and almonds are my favorites, altho we do vary our intake - salads with romaine, or mixed greens, as well as spinach (and I didn't see oats on your list - phew!)
ReplyDeleteIt really made me mad to find out that I was doing more harm than good with my diet. I’m going to do a 24 hour urine collection, eating my previous ‘healthy diet’ to get analyzed, since I never passed a stone that could be tested. There are a few other causes of stones, but I’m fairly sure my issue was the oxalate. Oats are fine! I’ve been buying oat milk for variety and enjoying it.
DeleteGood of you to share this cautionary tale! In your research, did you see anything about tea consumption as a trigger for kidney stones? I thought I'd read that somewhere...
ReplyDeleteStink that the first urologist was a dope. Glad you were able to find a better one.
Hi Betsy! There are mixed reports on coffee and tea. I think that tea is not good, esp. if it’s been steeped for more than a minute or two. I’m no longer drinking it, just to be safe. Yes, I’m glad I found someone better and was able to get in quickly.
DeleteI had no idea. I hate when you go in and the doctor gives you bad advice or just isn't very forthcoming and ignores. I had to deal with that for Ken a couple of times.
ReplyDeleteIt's terrible when a doctor makes you feel that way, especially when you are already nervous or scared.
DeleteOk, so this is really odd! You weren't kidding about waiting for your post. I literally LIVE on almond milk and almonds.. and here I was with a tonsil stone and cyst that I never even heard of. I wonder if they're related?
ReplyDeleteI'm so glad that it's nothing super serious. I'm also sorry to hear about the doctor with the terrible bedside manner. As if being ill isn't enough stress, doctors don't have to be complete a******* s to their patients, too! How can they give a proper diagnosis while staring at a lap top??? Stay healthy.. and maybe switch to cashew milk. I may do the same!
I have never heard of a tonsil stone, but it is a weird coincidence! I’m glad yours was easy to get taken care of. BTW, it’s sort of recommended to keep your tonsils now because they do offer some protection against illness. And for as many people who tell you they had theirs taken out and don’t get sick, my husband had his removed as a kid and he got strep throat from our kids much more than I did! Plus, he gets colds all the time and I haven’t had one since 2011.
DeleteNO, don’t switch to cashew milk. Cashews are high oxalate. Safer alternatives if you can’t have dairy are oat milk and coconut milk. I like oat milk because it’s thicker and makes a perfect latte.
I'm not a fan of coconut milk, but I can try the oat milk. My favorite is soy but it would make me bloat which is why I switched to almond. I did ask my dr to take out my tonsils and he told me "That's like shooting an ant with a beebee gun.". Which, to me, mean it's extra effective. He didn't like my interpretation of that! lol
DeleteAny surgery has its risks. Keep the tonsils! P.S. Soy isn’t great either, when it comes to oxalates.
DeleteWhen I was in Michigan, I had a staff member who had serious kidney stones and ended up in the hospital in her 20s! It ran in her family. Thankfully, I have not experience one and it appears, as I am way over 40, maybe I will be spared. I hope you get better soon.
ReplyDeletehttps://fromarockyhillside.com
Thanks, Jeff. Yes, I’ve read nightmare stories online about young people who get them every year or so. Like most things, there’s a definite genetic component. It’s something I never in a million years thought I’d get! I’ve got enough other bad genes.
DeleteThis is alarming. I can't do dairy because it aggravates my ulcerative colitis, so I do drink almond milk. I'll have to pay close attention to any pain and get checked for stones immediately if so. Thanks for sharing your story!
ReplyDeleteIt is alarming because nut milks and butters have really become popular and stones are also increasing (1 in 10 people). I recommend coconut or oat milk and try to get calcium from other food sources (NOT spinach). I listen to a podcaster who says that the problem starts with people hearing that spinach or almonds (or really, any food) are good for you, and then they start eating it every day by the handfuls. People don’t understand moderation (myself included).
DeleteSpinach doesn't work for me either- gives me the worst stomach pains. Isn't it on the dirty dozen list? I'll have to go look that up. I do like nut butters too, but don't eat them frequently, so I think a little here and there should be okay (fingers crossed). I had to have my gallbladder out many years ago because of stones and disease. It's definitely not something I want to experience in any other part of my body!
DeleteYes, spinach is the absolute worst food for stoners. Something like 650 mg of oxalate, when a stoner’s daily limit is 100. I will never touch it again. Would you believe I also have gallstones, but never knew until my first CT scan in May? And that’s only one of the many issues they found. I can’t even with any of it :(
DeleteGosh, I am so sorry to hear about your health issues :( I feel like being ill during this pandemic adds extra stress on top of everything else, too. Are they going to remove the gallbladder then? I hope you're able to find the right solutions to get you back in good form.
DeleteI’ve not seen my PCP since the scan. I’m not having any issues, so I’m not sure it needs removed? From what I read online, I don’t think they do anything unless it’s necessary.
DeleteThat's good then! Unless your PCP has a habit of not following up, then I'd be a bit pissed wondering what to do. However, I always thought they would take it out if they found stones. My doctor told me when he removed mine that he could just leave it be or just remove the stones, but if you got stones once, you would always get stones so it was best just to take it out completely to avoid more popping up in the future. I suppose if it's not bothering you now, I'd take a wait and see approach, but if they come back, I'd look into having it removed completely.
DeleteI wish my PCP didn’t follow up! Lol, I’m just tired of all the problems they find every year. I’m like the most physically fit person that walks into the office, but lots of hidden issues. Sigh.
DeleteThanks Bijoux for a very informative and helpful post. We do enjoy both spinach and almonds and some other foods you mentioned a being high oxalate like potatoes, brown rice, cocoa powder, cornmeal, raspberries, sweet potatoes, and walnuts so I will be sure to monitor our intake. Also, I have been taking a calcium supplement but may also stop that as well. I have a bone density test next week so it will be interesting to learn if there are any issues. The first doctor experience was absolutely horrid sounding and glad you found a better and more compassionate one.
ReplyDeleteYou’re so welcome. Like you, I was purposefully eating most of those foods because they are healthy. But I was also neglecting dairy, so it might have just been an unlucky combination of things for me. I was so relieved to find a new urologist!
DeleteOh, goodness, Bijoux, I am so sorry about this!
ReplyDeleteI'm hoping everything works out well for you.
That urologist sounds like a real ying-yang!
And thanks for the information about oxalates, which I confess I had never heard of. I, too, eat a lot of almonds, as well, as walnuts. Yikes!
Well, I've meaning to cut down on them both because of the fat content. This will really push things along.
I’m glad my post was informative. I really wish someone had told me this a few years ago. I vaguely remember reading something about spinach being a no-no for kidney stoners, but I didn’t think much about, never having had a family member with this issue. Lesson learned the hard way!
DeleteHoly cannoli. What an ordeal, Bijoux. I am glad you found out the source of the stone and shared your information with the rest of us. Hope you are able to get the current stone out as soon as possible. My brother gets kidney stones and he tells me how excruciating the pain is. Take care.
ReplyDeleteI’m just as happy to have the stone stay in my kidney till I die. I dread the day it decides to move again. Wishing your brother well!
DeleteCrazy that it took so long to get a diagnosis. Good that you can get surgery fairly quickly (I doubt it would be that quick in the UK). I had no idea about oxalates. I eat most of the foods listed, plus vitamin D pills, so I guess I'm lucky not to have developed kidney stones. Good luck with the surgery, I hope that puts things right.
ReplyDeleteI’m actually not having the surgery since the stone is back in my kidney and no longer obstructing. Yes, most people aren’t aware of the oxalate issue.
DeleteOops. I misread the post! I hope the wait-and-see approach brings a result.
DeleteMe too!
DeleteI dealt with kidney stones last year. Quite painful! I settled for a telemedicine visit with my doctor and took toradol for the pain. My only risk factor was low liquid intake. I was glad when they passed and it was over!
ReplyDeleteI remember your post! How did you know your risk factor?Did you do the Litholink test? I’m doing the 2 day one next week since I never passed the stone.
DeleteOuch that sounds really painful. I had no idea so thanks for the info. I do take Vitamin D tablets as I thought they were good for you, especially with the UK crappy weather. I'm glad the stone moved back into the kidney where it appears not to be bothering you. Long may that continue!
ReplyDeleteYes,I think those of us in cloudy climates do need Vitamin D. I think it’s best to get it from food sources and only supplement in small doses. Hope my stone stays put!
DeleteYikes! I've heard that kidney stones are one of the most painful conditions imaginable. I have some of the risk factors but not others. I definitely don't drink enough fluids, something I am forever trying to get better about.
ReplyDeleteThank you for the warning. I hope the situation improves for you, or at least, doesn't get any worse.
Thanks, Mark. It really is hard to drink water all day. I’m working on that, too.
DeleteOh man, I can't even imagine the intensity of that pain. I had a kidney stone once about 20 years ago, but the excruciating pain only lasted about an hour. I'd finally had enough and asked my then-wife to take me to the ER. The half hour ride was unbearable and I was doubled over in the passenger's seat the whole way, thinking I was going to pass out more than once. A fever took hold, and we after we entered the hospital I had to pee badly. Almost immediately afterwards the fever disappeared and the pain was just gone. I felt like an idiot, and the physician said I must've passed the stone when I peed. I'm sorry you've had to endure this, Bijoux, and hope it doesn't haunt you. This is also a very informative post! Good luck.
ReplyDeleteWow, thanks for sharing your story. I certainly can imagine that horrific car ride. But I’m so glad you passed the stone quickly. I feel like everyone I know has passed theirs within hours or days. Mine feels like a time bomb ticking away in my kidney.
DeleteI have never had a kidney stone (knock on wood) . My son had one a few years ago. He said it was really painful! He ended up having to have his blasted with ultrasound to break it up. I hope yours stays put for a while!
ReplyDeleteI guessed that there would be readers who have had stones or knew those who have, as it’s a 1 in 10 likelihood. Glad your son was able to get rid of his.
DeleteI understant you so well Dear Bijoux! I got that pain in my kidneys in 2009 (My God! I felt i was dying). The same first hospital and its doc was idiot. Changed the hospital fastly and got wellness THanks God. Sometimes i feel that medical schools give diploma all medical students even they are idiot! I hope i am wrong. Healthy days to you Dear friend. Greetings from Turkey.
ReplyDeleteOh my goodness, I’m sorry you went through a similar circumstance. Hope all is well now!
DeleteI would never have guessed that a post about kidney stones would be so interesting! I even read every single comment. Fascinating information. Glad to know that my couple of times a week "sleeping pill" (hot chocolate made with milk) is not one of the demons. Glad all is well for you now though you made me laugh at that "time bomb ticking away in my kidney!"
ReplyDeleteI’m so glad you found the post informative!
DeleteI didn't know any of this about kidney stones.
ReplyDeleteI'm glad you're mostly okay! I was wondering about you since you usually post consistently. I hope things stay good and you don't end up needing surgery. Kidney stuff really freaks me out, so I had to read this in stages. Thanks for sharing, though. That's good to know about Vitamin D. My Vitamin D levels are always super low and they're always telling me to take a supplement. I don't do the best job of taking one every day, but now I'm wondering if that's actually a good thing.
ReplyDeleteI'm so glad you went to a different urologist after the first one was such a moron. It can be so hard to question doctors and advocate for yourself, but it sounds like it really paid off for you.
Kidney stuff never freaked me out until now! I think it’s best to get all your vitamins via food. Supplements usually just concentrate in the urine, which can be harmful. I’ve had a couple of real winners, when it comes to physicians. Fortunately, we have plenty to choose from here.
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